Trying to spread understanding of diabetes is tough. It is a fine line between scaring people and being over reassuring. As a mum to a type 1 warrior I want you to appreciate all she endures, whilst not being afraid to have her come play.
Diabetes is constant, it cannot be cured, it doesn’t go away, it changes the rules all the time and needs to be factored into every day to day decision.
It has all but removed spontaneity from our lives.
Molly, who copes with this disability far better than I ever could, lives her life hand in hand with the pump that sits on her hip keeping her alive.
I mourn for what should be.
I want her to be able to wrench her shoes off at the beach and dive headlong into the waves. She can’t, the pump must be removed, her blood tested, a clip attached to the ever present cannula.
I want her to be able to ride a rollercoaster without having to think about removing the pump, finding a friend to hold it, and then going in the exit as her time without having the pump on is limited. The mechanics of the ride damage the pump. The pump is worth over four grand, you can’t just leave it idle.
I want her to be able to eat without counting carbs, to be able to eat a refresher sweet she was given at school without suffering a high. I want her to drink apple juice because she likes the taste, not because she is having a hypo. I want to watch her pick at grapes without programming her carbs.
I want her to be able to sleep for 12 hours without me having to jab her finger with a needle.
I want her to be able to see the world without worrying about how to keep her insulin cold.
I want her to not have to inject herself every three days, to go to hospital ever six weeks.
Most of all, I want her to not have to manage a condition that if ignored will kill.
Diabetes is tough, manageable but hard. I’d rather a future for Molly without it in it. Molly doesn’t mind for now, but she is all too painfully aware, at the tender age of 8 that her future children have a high chance of developing diabetes. That her twin and baby sister share that same risk.
It is for her siblings, and her future family that she wants a cure.
My kid is both selfless and amazing.
And she needs your help.
Next weekend, Molly is fund-raising for Diabetes UK, who have helped so much in our journey on this unwanted path. She is asking her entire school to give up treats, sweets, and chocolate for 2 days and getting sponsorship to do so. A friend of ours we met on a diabetic weekend gave us the idea for a Sweetathon and Molly has really embraced it.
She is joining in herself (diabetics can eat sweets and chocolate!)
You can sponsor her and her school friends here… Even a pound makes a difference.
Please leave a message of support, she is 8, terribly brave and so keen for this to do well.
From Molly and her mum.
X x x